“Your Drugs Aren’t Working”

[ActiveMSers]

Thanks for the kind words. I'll keep everyone posted as to what direction I'm going to take.

As for how the docs know what is and isn't working, well it's a tough call. If you are having relapses and they are getting more frequent, that's one sign. Another is your level of disability and how much (and how fast) it is increasing. And another is lesion load on the brain or spine.

With my walking getting a bit more sketchy and two relapses in the last 15 months, neuros opted to pull the trigger. Not bad, but it could be better, and keeping this disease at bay isn't something to hem and haw about.

[happykayaker]

I am thinking about changing my "drug of choice". Keep us posted!

Our thoughts are with you!

[andersimp]

Dave - and ActiveMS friends -
My heart sinks to read this - though I've heard it in person from you too. My experience is living with PPMS - and since Copaxone (with the macarena) is not approved for PPMS, I just take it, and live with FAITH (of some sort most days) that it's helping? slowing the progression? limiting new lesions? but hard to tell. New symptoms this week ... guess that's all part of it.
AND
I'm in the process of recording my story - with a song "When one door closes, another door opens wide" -- will have CD available soon! Stay tuned (pun intended)
Caitlin in ABQ