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View Full Version : Dave's SCT Journey

  1. HALT-MS: study overview
  2. Trial Ins & Outs of the Expanded Disability Status Scale (EDSS)
  3. HALT-MS: study details and slide show
  4. How I'm telling readers of the magazine I edit and co-own
  5. Early results from the Phase II HALT-MS trial
  6. Clinical trials for MS, my thoughts, and how to apply
  7. How does one fill up an iPod for a 3-week hospital stay?
  8. HOME! Many thanks, details to come
  9. FAQs: Dave's stem cell transplant—the risks, the costs, the benefits(?), and more
  10. Worst 5 Invasive Procedures for the SCT trial
  11. The stem cell scam: a 60 Minutes expose on the medical snake oil of SCs
  12. THE WHY: What was I thinking when I signed up for a risky stem cell transplant?
  13. #1 PRE-ADMISSION: testing, procedures, stem cell harvesting, more
  14. #2 ADMISSION: shaving head, rabbits, hydration, IV love, sleep deprivation, showers
  15. #3 CHEMOTHERAPY: mouth care, lung care, exercise, fever spike, helicopters
  16. #4 STEM CELL TRANSPLANT: mom arrival, second birthday, smelling like corn
  17. #5 CHEMO AFTERMATH: barfing, passing out, bed pan emergencies, sponge baths
  18. #6 RECOVERY: MacGyvering exercise bike, transfusions, diseased catfish
  19. My stem cell transplant may have caused my broken leg (and why that's good news)
  20. Strangest side effect so far of the SCT
  21. SOOO, did it actually work?!?!
  22. Blogs/Videos of fellow HALT-MSers
  23. Out of the danger zone? Crap, not so fast...
  24. Death of HALT MSer does not effect study
  25. 98 and counting... pages of insurance denial
  26. A little nervous, a little excited with 6-month testing
  27. Allergies: are they gone?
  28. Official Month 6 Update
  29. Ugh, expensive surprise in the mail
  30. Oh Canada! Similar trial up north seeing successes
  31. Good luck Chris & Erin (Dec 2 start date)!
  32. Personal best walking week!
  33. 23 for 23!
  34. Drove for the first time in 16 months
  35. HIV perhaps "cured" with bone marrow stem cell transplant
  36. Walking nonstop (with aids) for a half hour
  37. Pets?
  38. Full Post-SCT Discharge Instructions
  39. SCT for Non RR?
  40. Standing to shower these days
  41. Not a First Line Treatment?
  42. Tour of art gallery yields surprise
  43. Wow, I just made a full dinner standing up
  44. Tricks of the PT trade really do work
  45. What? Give up my BINKY?! Stopped using walker (mostly)
  46. Published results, Published updates
  47. Playing Xbox again... didn't play at all in 2010
  48. Went grocery shopping for first time since 2009
  49. Walked 3/4 of a kilometer (750 meters) without aid!
  50. Celebrated 18th wedding anniversary, a redo of #17
  51. Month 9 recovery featured major milestones
  52. Video of Hope, Part 1: Documenting the SCT
  53. Shot hoops (even dribbled) yesterday
  54. Unbelievable. I guess miracles do happen (please note sarcastic tone)
  55. Not sleeping great, but I'm not tired
  56. Lisa recently transplanted at Northwestern
  57. Northwestern accepting stem cell transplant patients OUTSIDE of clinical trial
  58. Australian gets HALT-MS style SCT
  59. Early highly aggressive MS successfully treated by hematopoietic SCT (study abstract)
  60. Attacking T cells in MS critical says report
  61. Month 10 milestones
  62. Patient (David) from 2000 who had HSCT done
  63. James Ellison transplanted in 1999, on Today Show in 2010
  64. Pilates "roll up" sees massive gains
  65. Long-term results of stem cell transplantation for MS
  66. Celebrating my one year "birthday"
  67. Preparing for 1-year visit to Houston
  68. Test I LEAST want to do at my appointment (try it yourself!)
  69. Aussie TV news story: Aggressive MS stopped/reversed with HSCT
  70. Official Year 1 Update
  71. Airport adventures that weren't adventures
  72. First round of immunizations Monday
  73. Perspective on the risk of HSCT
  74. Met up with fellow HALT-MSer in Austin
  75. Mustard gas is $$$$!
  76. Off to Houston for Month 13 MRI
  77. Met up with SCT pioneer Craig Garrison
  78. Blast! First cold in 2.5 years
  79. Long-term care after stem-cell transplantation
  80. Did 20 minutes on the Nordic Track
  81. World SCT registry being considered after Aussie transplant
  82. Up to 55 minutes of continuous walking (aided)
  83. SPMSer currently undergoing transplant in Germany
  84. Five reasons NOT to get HSCT
  85. One reason TO get HSCT
  86. Legs finally working better
  87. Seeing an endocrinologist tomorrow for low testosterone
  88. "Stem cell clinics ripping off patients, bullying scientists"
  89. Facilities specializing in transplants critical for lowering mortality risks
  90. Immunizations, Round 2, a serious bugger
  91. UK stem cell trials getting funded
  92. Ha, local MS Society talked me up on radio last week
  93. First time to my local gym in 20 months!
  94. Long-term health impacts of HSCT potentially serious
  95. MSC stem cell treatment "5 to 7" years out from being approved as treatment
  96. Stella (UK) transplanted one week ago
  97. Video of Hope, Part 2: Continued Improvements, The Wall, Spreading Hope
  98. Played tennis today!
  99. Using a single cane around home
  100. Autologous HSCTs: The science behind why it may lead to long-term remission
  101. New blog chronicling day-by-day Northwestern transplant
  102. Over 1 hour of walking nonstop (new high!)
  103. Current MS stem cell transplant clinical trials
  104. STUDY: Early versus late/salvage autologous haematopoietic stem cell transplantation
  105. STUDY: Quality of life after autologous haematopoietic stem cell transplantation
  106. STUDY: Neurological recovery following chemo and stem cell transplant
  107. PROPOSALS: Worldwide Phase III aHSCT study, challenges
  108. FAIL Ampyra Log: Started Oct 31, 2011
  109. Really? Another insurance denial letter
  110. HSCT retrospective study: why it works in MS, the future, and the challenges
  111. CDC Guidelines in preventing infections among HSCTers
  112. STUDY: Long-term results from Italian study, autologous HSCT for MS
  113. FATIGUE!!! It's not what you think....
  114. Doctor with MS undergoing SCT at Northwestern
  115. Never Think
  116. Stem Cell Transplantation for Autoimmune Disease—Is It Now Ready for Prime Time?
  117. STUDY: No proinflammatory signature after SCT
  118. Celebrating 19th Wedding Anniversary
  119. 75 minutes nonstop walking/exercising, new PR
  120. Stem Cell Therapy Promising in Secondary Progressive MS